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Walk for EB Epidermolysis Bullosa |
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Walk for EB Epidermolysis Bullosa |
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About Us Carson Kissell, the son of Kristy & David, was born on April 7, 2007 with a rare genetic skin disease called Epidermolysis Bullosa (EB). EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma. People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings.
Who are we: The Walk for EB committee is a group of Carson’s closest family and friends who are dedicated to raising awareness and hosting fundraising events in hopes of finding a cure for EB.
In its first three years, the Walk for EB has raised over $50,000 to benefit the EB Medical Research Foundation (EBMRF). The EBMRF has helped to fund research at places such as the Dermatology Department at the University of Southern California, and the Dermatology Department at Stanford University. A grant from the EBMRF was also recently awarded to the University of Minnesota to help fund their work on using bone marrow transplants as a possible treatment for EB.
Click here to visit the EBMRF website.
Pictured Above: The Walk for EB Committee
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