Walk for EB

EB Information & News

The below sites can provide you with more information on EB, as well as link you to some current research news.

EBMRF (Epidermolysis Bullosa Medical Research Foundation)

www.ebkids.org - EB Medical Research Foundation (EBMRF) is a volunteer, non-profit foundation dedicated to the support of medical research of EB, its causes, the development of successful treatments, and ultimately its cure.

dEBra (Dystrophic Epidermolysis Bullosa Research Association of America)

www.debra.org — the Dystrophic Epidermolysis Bullosa Research Association of America (dEBra) is a non-profit organization dedicated to both promoting research to find new treatments and a cure for EB and providing information and support for people with EB and their families.

EB Center @ Cincinnati Children’s Hospital

Click here to visit their website

Walk for EB Videos

Bath Kit Preparation -- Caring for a Child with EB (YouTube Video)

Walk for EB Video -- from the 2010 Walk for EB (YouTube Video)

Cincinnati Catholic Telegraph Article

The Kissell Family was featured in a September 2011 article in the Catholic Telegraph, a publication in the Archdiocese of Cincinnati.

Click here to view the article.