About Us

Carson Kissell, the son of Kristy & David, was born on April 7, 2007 with a rare genetic skin disease called Epidermolysis Bullosa (EB).   EB is characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor friction or trauma.   People with EB are often associated with butterflies, because their skin is as fragile as a butterfly’s wings.

 

 

Who are we: The Walk for EB committee is a group of Carson’s closest family and friends who are dedicated to raising awareness and hosting fundraising events in hopes of finding a cure for EB.

Walk for Epidermolysis Bullosa (EB)